With the exception of the pictures and the walk-links this is a unedited post, so forgive me if it's not what you expected; I did not want to edit a thing on it as it was written in the heat of the moment and with much emotions.
There are no good words you can actually say to a parent who has lost their child. My heart breaks for my friend and mother of this amazing 6 year old little girl that recently lost her battle to Myesthenia Gravis. Safa was her name, and she was an inspiration to everyone that meet her. It's a very sad time!
I learned that Safa was having problems breathing on her own, and then heard that she was no longer with us. This was one of the updates that we got via Facebook: "We tried to keep life support on to keep her here for Aamer (her Dad, he was out of the country) but her little body just couldn't handle it. Although she was already gone, she officially passed at 8:30 this morning" (Sunday Sep 09 2012 in Ohio USA).
After that moment I have not been myself, my emotions have been all over the place (I'm sure in part it has to do with me being expecting). I have been crying on and off, I keep hiding from Kira (my 2 year old) so she would not see me sad, but on occasions she has notice my sadness and asked me what's wrong, I would just hold her and tell her I love her, that I’m ok, but shortly after I find myself crying again.
I really can’t imagine the pain and agony that Jameela (Safa's mom) and her family are going through. It’s a very sad time, no parent should have to see their child pass away. Jameela had and was doing so much to see her little girl have a regular normal life and now her little one is gone. I'm confident that she is a little angel looking down at us and being grateful for the amazing family that she was born into, I do trust that God has a plan for Safa, yet that does not take away the pain of losing this amazing little girl.
If you are a parent I'm sure that you can relate and feel for this family, I would like to take this opportunity to spread awareness about this disease, it was due to Safa's MG that her heart was very week and ended up with this tragedy. Myasthenia Gravis, is to be taken very seriously so that no other human being has to go through what this little girl and her family are going through.
Myasthenia Gravis or MG, Taken from The MGWalk website: "Affects people of any age, race or gender. The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups, and can affect muscles that control eye movements, eyelids, chewing, swallowing, coughing and facial expression as well as the arms and legs. MG also can affect breathing. The prevalence of MG in the US is estimated to be about 1 in 5,000 people." If you are interested in learning more about this disease, visit the oficial site for Myasthenia Gravis.
Please help us spread the word, we also have an scheduled walk and fundraiser in honor of this little angel, unfortunately Considering the date of the walk and my due date I'm not sure that I would be medically cleared for the physical walk, but I was happy to be informed that we can join and participate in the virtual walk, and now I'm without a doubt participating in this walk.
Please Visit our "MG Walk" personal fundraising page for this Little Angel, and I hope you have it in your hart to donate and help us spread the word to find a cure for this decease. http://www.mgwalk.org/littleangel